Aria will be 13 soon. She loves to swim, because floating in warm water is the only place she gets some relief from her daily pain.
Aria was born with every long bone in her body broken. By the time she was three, she had 150 breaks under her belt. Aria suffers from Brittle Bone Disease.
Kason is a fun loving 12 yo who loves Roblox and sleepovers. His twitching started at 10 yo. His frustration showed as doctors and teachers weren’t seriously concerned.
He struggled making it to school as mornings are the worst time for his yet undiagnosed Juvenile Myoclonic Epilepsy..
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On June 6th Haileigh started to have stomach aches almost daily. They did blood work and noticed her white blood cell count was elevated and sent her to an emergency room.
Once at the ER they did more blood work and a CT scan of the abdomen and found numerous tumors.
In early April of 2017 we learned at a routine O.B. appointment that our 2nd baby girl- whom we had already decided to name Addelyn- had developed enlarged ventricles with excess cerebral spinal fluid in the brain.
Kaydia had a tele visit with her neurologist in May who wanted to do and MRI of her brain to her pelvis.
Her neurologist took us in the room and explained that she had a large growth in her pelvis on her sacrum. He said they believed that it was an Aneurysmal bone cyst (ABC).
Jett was born on January 28th, 2008. He was such a sweet baby with a mild temper.
As he got older, we started to notice a weakness about him, so we ordered a genetic test. We were told that Jett had Duchenne Muscular Dystrophy (DMD).
Paige was first diagnosed with Neurofibromatosis (NF1) when she was 3 years old.
When she was born, her doctor mentioned the possibility that she may have NF1 based on the many brown spots all over her body.
Carson was your typical teenage boy who was involved in sports, he loved to hang out with his friends, pull pranks on others and have a great time, then in May of 2006 he was diagnosed with bone Cancer…
Blayze was diagnosed with Gelastic seizures in April of 2013 when he was 5 years old.
That’s when our Epilepsy adventure began. It was later confirmed by radiology that Blayze had a tumor in his right thalamus…
Nathaniel was only 7 years old when he was diagnosed with Osteosarcoma. Our world was turned upside down on August 9, 2011, the day before Nathaniel was supposed to start the 2nd grade…