Laith and his twin brother were born September 2021 at 30 weeks gestation. Laith suffered a brain hemorrhage which went unnoticed for nearly 8 months.
When he finally got an MRI of his brain it showed periventricular leukomalacia (PVL). PVL is an incurable injury which affects the white matter of the brain.
Cayden is a 16-year-old who is a Sophomore at Thatcher High School. He enjoys hanging out with his friends, football and video games. Cayden was diagnosed with Hodgkin’s lymphoma In October.
He’s been coughing for several weeks nonstop and had a huge lump on his left side of his neck. The lump just continued to grow and no antibiotics were helping.
Providing financial assistance to families with children who have been burdened with life-altering diagnoses.
If you would like to help our cause please click the ‘Donate Now’ button below to get started, or you can volunteer your time at one of our fundraisers!
Aria will be 13 soon. She loves to swim, because floating in warm water is the only place she gets some relief from her daily pain.
Aria was born with every long bone in her body broken. By the time she was three, she had 150 breaks under her belt. Aria suffers from Brittle Bone Disease.
On June 6th Haileigh started to have stomach aches almost daily. They did blood work and noticed her white blood cell count was elevated and sent her to an emergency room.
Once at the ER they did more blood work and a CT scan of the abdomen and found numerous tumors.
In early April of 2017 we learned at a routine O.B. appointment that our 2nd baby girl- whom we had already decided to name Addelyn- had developed enlarged ventricles with excess cerebral spinal fluid in the brain.
Kason is a fun loving 12 yo who loves Roblox and sleepovers. His twitching started at 10 yo. His frustration showed as doctors and teachers weren’t seriously concerned.
He struggled making it to school as mornings are the worst time for his yet undiagnosed Juvenile Myoclonic Epilepsy..
Paige was first diagnosed with Neurofibromatosis (NF1) when she was 3 years old.
When she was born, her doctor mentioned the possibility that she may have NF1 based on the many brown spots all over her body.
Carson was your typical teenage boy who was involved in sports, he loved to hang out with his friends, pull pranks on others and have a great time, then in May of 2006 he was diagnosed with bone Cancer…
Jett was born on January 28th, 2008. He was such a sweet baby with a mild temper.
As he got older, we started to notice a weakness about him, so we ordered a genetic test. We were told that Jett had Duchenne Muscular Dystrophy (DMD).
Kaydia had a tele visit with her neurologist in May who wanted to do and MRI of her brain to her pelvis.
Her neurologist took us in the room and explained that she had a large growth in her pelvis on her sacrum. He said they believed that it was an Aneurysmal bone cyst (ABC).